Project Engage connects bereaved families with the research process. Involving those who have been affected by stillbirth in the research process in a meaningful way ensures that the issues important to bereaved families are heard and prioritised. This ultimately helps the Stillbirth CRE to produce research of greater quality and relevance, to help reduce stillbirth rates, and ensure that parents and families receive the best possible care when a baby dies.
Phase 1- Co-designing a guide to support bereaved parents to become involved in stillbirth research.
The guide is now complete and covers all aspects of how to be involved in research about stillbirth and what to expect when participating in the research process. We have also included quotes from bereaved parent researchers who have shared some things they found helpful, as well as examples that could be useful.
Access and download this free resource below via our get involved page. Project Engage Summary Document
https://pubmed.ncbi.nlm.nih.gov/39752766
Phase 2- Co-designing with bereaved parents a sustainable framework to enhance stillbirth research quality and translation.
A parent registry was identified as the essential next step to provide a process for connecting parents with research. Phase 2 seeks to develop, refine and evaluate the “Stillbirth Research Involvement Registry” as a model for enabling and sustaining effective bereaved parent involvement. We aim to evaluate this through a co-designed sustainable framework.
Specific aims are to:
Level 3, Aubigny Place
Mater Research Institute
Raymond Terrace,
South Brisbane QLD 4101
The University of Queensland Faculty of Medicine