NEW 2024 edition: Care Around Stillbirth and Neonatal Death Clinical Practice Guideline available now
Our Vision
Our Vision
Our vision is to reduce the devastating impact of stillbirth for women, families and the wider community through improving care to reduce the number of stillborn babies and to reduce the impact of this loss.
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Meet the network of people, organisations, and professional institutions driving research and program implementation across the Stillbirth CRE.
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Explore some of the latest Stillbirth CRE research projects, scientific studies, and educational campaigns on stillbirth prevention and care after stillbirth.
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Our aim is to improve care to reduce the number of stillborn babies and to reduce the impact of this loss.
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Living with Loss Study

Online Grief Support for Parents Following Stillbirth or Newborn Death

The Stillbirth Centre of Research Excellence (Stillbirth CRE) is coordinating a research study to evaluate a new online program designed to support parents following the death of their baby.

This new online support program called ‘Living with Loss’ has been co-designed and developed by a team of parents and healthcare professionals. The program will provide another support option for parents and focuses on sharing proven evidence-based coping strategies (commonly used by healthcare professionals e.g. psychologists, social workers etc) that may be helpful in understanding and navigating your way through your grief now and over the long-term.

Program Overview

The LWL program features six interactive, easy-to-use modules, that follow the fictional stories of a group of parents who have experienced the death of their babies.

Module 1: Understanding Grief.

Module 2: Managing Intense Feelings

Module 3: Balancing Thoughts

Module 4: Facing Difficult Situations and Conversations

Module 5: Strengthening Relationships and Communication

Module 6: Navigating the Future

Register to participate in the study

We now seek to evaluate this new online program in a rigorous research study to determine how helpful and effective the program is for parents who have experienced stillbirth or neonatal death in the last two years. We hope that our research and the Living with Loss online program can help improve support options for parents and families in Australia.

Parents who have experienced stillbirth or the death of a newborn in the past two years are invited to participate in this research study.

Coming in May 2024

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