Project Engage Study

Co-designing a guide to support bereaved parents to become involved in stillbirth research.

Project Engage connects bereaved families with the research process. Involving those who have been affected by stillbirth in the research process in a meaningful way ensures that the issues important to bereaved families are heard and prioritised. This ultimately helps the Stillbirth CRE to produce research of greater quality and relevance, to help reduce stillbirth rates, and ensure that parents and families receive the best possible care when a baby dies.

The project team have co-designed a guide which covers all aspects of how to be involved in stillbirth research and what to expect when participating in the research process. We have also included quotes from bereaved parent researchers who have shared some things they found helpful, as well as examples that could be useful. Access and download this free resource via our get involved page.

The next steps of this project include undertaking a survey and interviews of researchers and healthcare professionals who partner with bereaved parents in research. We aim to understand the barriers and enablers to parents getting involved to inform the development of a sustainable framework to enhance involvement. To lead this work further and provide overarching advice to the Stillbirth CRE about parent engagement and involvement, we have also established the Bereaved Parent Advocacy Committee.

Project Engage Summary Document