NEW culturally adapted resources available now
Our Vision
Our Vision
Our vision is to reduce the devastating impact of stillbirth for women, families and the wider community through improving care to reduce the number of stillborn babies and to reduce the impact of this loss.
People + Partners
People + Partners
Meet the network of people, organisations, and professional institutions driving research and program implementation across the Stillbirth CRE.
Our work
Our Work
Explore some of the latest Stillbirth CRE research projects, scientific studies, and educational campaigns on stillbirth prevention and care after stillbirth.
News + Events
News + events
View the latest news and events from the Stillbirth CRE and our collaborating partners.
Get Involved
Get Involved
There's so many ways to contribute to stillbirth research. Sign up to our newsletter to stay in touch with the latest news, join our community, make a donation, or participate in research. Find out all the ways to Get Involved.

Living with Loss Study

Online Grief Support for Parents following Stillbirth or Neonatal Death

The Stillbirth Centre of Research Excellence (Stillbirth CRE) is coordinating a research study to evaluate a new online program designed to support parents following the death of their baby.

This new online support program called ‘Living with Loss’ has been co-designed and developed by a team of parents and healthcare professionals. The program will provide another support option for parents and focuses on sharing proven evidence-based coping strategies (commonly used by healthcare professionals e.g. psychologists, social workers etc) that may be helpful in understanding and navigating your way through your grief now and over the long-term.

Program Overview

The LWL program features six interactive, easy to use modules, that follow the fictional stories of a group of parents who have experienced the death of their babies.

  • Module 1: Understanding Grief.
  • Module 2: Managing Intense Feelings
  • Module 3: Balancing Thoughts
  • Module 4: Facing Difficult Situations and Conversations
  • Module 5: Strengthening Relationships and Communication
  • Module 6: Navigating the Future

Register to participate in the study

We now seek to evaluate this new online program in a rigorous research study to determine how helpful and effective the program is for parents who have experienced stillbirth or neonatal death in the last two years. We hope that our research and the Living with Loss online program can help improve support options for parents and families in Australia.

Parents who have experienced stillbirth or the death of a newborn in the past two years are invited to participate in this research study.

Stay informed

Be part of our email community to find out how we’re helping to reduce stillbirth.